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Purdue Libraries and School of Information Studies News

Books on Health and Aging

October 16th, 2020

From a memoir on navigating America’s elder care system to the go-to resources on living with Parkinson’s and Alzheimer’s, Purdue University Press has a timely and useful collection of books on the experience of aging in America.


THE COMPLETE GUIDE FOR PEOPLE WITH PARKINSON’S DISEASE AND THEIR LOVED ONES by Lianna Marie

Life with Parkinson’s Disease

 

The Complete Guide for People With Parkinson’s Disease and Their Loved Ones

by Lianna Marie

 

The Complete Guide serves as the go-to book for comprehensive, easy-to-understand information for all Parkinson’s patients and their loved ones. A trained nurse and primary caregiver for her mother, who was diagnosed with Parkinson’s disease in 1991, Lianna Marie draws upon over twenty years of education, research, and direct experience.

 

Everything You Need to Know About Caregiving for Parkinson’s Disease

by Lianna Marie

 

Caregivers for those with Parkinson’s disease do the utmost for their loved ones, often neglecting their own health in the process.  This book is not just about caring for a loved one, but also about taking care of yourself, providing an essential resource for all caregivers of those with Parkinson’s disease.

 

 

book cover, an elderly woman sitting on a book shelf
SHELVED: A MEMOIR OF AGING IN AMERICA by Sue Petrovski

Healthy Aging and Elder Care

Shelved: A Memoir of Aging in America

by Sue Petrovski

 

Shelved provides readers with a personal account of what it is like to leave a family home and enter a new world where everyone is old and where decisions like where to sit in the dining room fall to low-level corporate managers. Showcasing the benefits of communal living as well as the frustrations of having decisions about meals, public spaces, and governance driven by the bottom line, Petrovski delivers compelling suggestions for the transformation of the elder care system.

Changing Seasons: A Language Arts Curriculum for Healthy Aging

by Denise Calhoun

 

In Changing Seasons, Denise Calhoun provides a language-based, interdisciplinary program to help older adults improve their communication skills. The activities in the book promote meaningful interactions and the creation of a stimulating environment, underscoring the importance of sustaining quality of life as we and those we love age.

 

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CREATING MOMENTS OF JOY ALONG THE ALZHEIMER’S JOURNEY by Jolene Brackey

Memoirs and Guides on Alzheimer’s

 

Creating Moments of Joy Along the Alzheimer’s Journey: A Guide for Families and Caregivers, Fifth Edition, Revised and Expanded

by Jolene Brackey

 

Creating Moments of Joy is filled with practical advice for those impacted my Alzheimer’s disease, and sprinkled with hope, encouragement, new stories, and generous helpings of humor. We are not able to create perfectly wonderful days for people with dementia or Alzheimer’s, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger.

 

At Wit’s End: Plain Talk on Alzheimer’s for Families and Clinicians, Second Edition

by George Kraus

 

A straightforward summary of leading advice for understanding and caring for someone with Alzheimer’s disease, written without technical jargon and impractical nuance. With this broad, thoughtful, and grounded approach, family members, clinicians, and caregivers are better able to discover and make wise choices from a wealth of effective interventions in all areas of care. It also allows them to care for themselves and their families in the dynamic and supportive care process.

 

A Return Journey: Hope and Strength in the Aftermath of Alzheimer’s

by Sue Petrovski

 

A Return Journey draws on journals the author kept as a caregiver during her mother’s eight-year battle with Alzheimer’s, and on her correspondence with other caregivers who were kind enough to share their innermost feelings and emotions. Petrovski clearly and wisely explains that in Alzheimer’s care there are no “right” ways, no “best” decisions, no “perfect” answers.

 

Forget-Me-Not: A Memoir of Anne Bashkiroff’s Alzheimer’s Crusade

by Gail Holland and Anne Bashkiroff

 

Anne Bashkiroff was a pioneer in the fight for Alzheimer’s awareness. The consequences of Alzheimer’s and the extended burden the disease places on families and caregivers was not fully known in the 1970s. Instead of giving up after her husband’s diagnosis with the disease, Bashkiroff moved to make the world aware. Her strength and dedication led her to help establish the Family Survival Project.

 

 


You can get 30% off all Purdue University Press titles by entering the code PURDUE30 at checkout on our website.


Purdue University Libraries in Negotiations with Elsevier

October 15th, 2020

 

 

Each year, Libraries negotiates with publishers and vendors to provide access to the databases and journals that advance Purdue University’s world-changing research and transformative instruction. 

For many years, Purdue has licensed access to most journals published by Elsevier for the West Lafayette, Fort Wayne, and Northwest campuses. Usage for many of these subscriptions is high, but so is the cost, and it has risen significantly over the past decade.  When we negotiate with publishers, we seek contracts that are affordable, sustainable, and transparent, but sometimes, publishers insist on significant increases that far exceed available funding.  For 2020, Purdue paid a staggering $3.3M for access to Elsevier content, and we are currently in negotiations with Elsevier for journal subscriptions for 2021.  

This past June, we alerted Elsevier that we must reduce Purdue’s total spend on publications by $1.5M.  This reduction is necessary due to the Libraries’ allocated budget and also reflects the need for more fair and equitable pricing.  Purdue pays more for Elsevier subscriptions than many of our peer institutions, and our contracts are based on a complicated and archaic pricing strategy that favors Elsevier while hurting universities like Purdue.  

In July, Elsevier proposed three options for 2021 pricing, none of which met our need for a reduced cost.  We offered a reasonable counter proposal in August, which Elsevier declined to consider.  As of early October, we are waiting to hear back from Elsevier on another proposal, one which we hope will honor our needs. As we move forward with these negotiations, we look to the University Library Committee (ULC), a group that reports to the Senate’s University Resources and Policy Committee, for input and guidance. 

If Purdue cannot come to a satisfactory conclusion with Elsevier and reach an agreement which is both affordable and sustainable, we will be forced to significantly reduce the number of journals to which we subscribe.  Over the past few years, some universities have terminated their subscription contracts with Elsevier entirely, and others have greatly reduced their subscription offerings, all due to the inability to arrive at a satisfactory cost agreement.  (See the University of California and the University of North Carolina for recent examples.)  Should a reduction in subscriptions become necessary, rest assured that Libraries will provide campus with alternative means to access the content that our students, staff, researchers and faculty need to meet their information resource needs. 

 


SPRING ’21 Course Spotlight on ILS 23000: Data Science and Society: Ethical, Legal, and Social Issues

October 14th, 2020

ILS 23000:  Data Science and Society: Ethical, Legal, and Social Issues 

Meeting Time:  DIS

Instructor:  Kendall Roark

This course provides an introduction to Ethical, Legal Social Issues (ELSI) in Data Science. Students will be introduced to interdisciplinary theoretical and practical frameworks that can aid in exploring the impact and role of Data Science in society. This is a writing intensive course. Students will work individually and on collaborative assignments.

Learning Outcomes

1. Engage in current debates surrounding professional and research ethics, roles and responsibilities in Data Science.
2. Examine emerging legal and policy issues which impact Data Science.
3. Critically reflect on the relationship between Data Science and political, social and cultural change.
4. Learn collaboration, public engagement and scholarly communication skills.


SPRING ’21 Course Spotlight on ILS 59500: GIS for Humanities and Social Science Research

October 13th, 2020

ILS 59500: GIS for Humanities and Social Science Research

Instructor: Nicole Kong

This course will introduce you the skills of spatial thinking, basic functions of Geography Information Systems (GIS), and spatial research methods that are relevant to humanities, social science, and related fields. The course will start with introduction to basic GIS concepts and technology, then move into GIS applications during the research process, including spatial research design, data collection, management, visualization, and spatial analytical techniques. Practical work will be introduced and completed using ESRI ArcGIS Pro software.

Learning Outcomes

  1. Understand the basics of mapping and geospatial information using ArcGIS Pro.
  2. Be able to apply spatial research methods into your own research.
  3. Be able to produce professional maps to visualize spatial data.
  4. Be able to document and manage spatial data using coherent/standardized methods.
  5. Understand several spatial analysis methods that are relevant to your research area.
  6. Be able to create a web or mobile based GIS application using ArcGIS Online


Guiding Patients and Caregivers on Their Parkinson’s Journey: Q&A with Lianna Marie

October 13th, 2020

We talked to Lianna Marie, the author of two new Purdue University Press books, The Complete Guide for People With Parkinson’s Disease and Their Loved Ones and Everything You Need to Know About Caregiving for Parkinson’s Disease.

The Complete Guide serves as the go-to book for comprehensive, easy-to-understand information for all Parkinson’s patients and their loved ones, and Everything You Need to Know provides an essential resource full of useful information for all caregivers of those with Parkinson’s disease.


Q: What about your experience as a caregiver motivated you write these books?

Lianna Marie: My greatest motivation for writing these books was a conversation I had with my mom in her fifteenth year of living with Parkinson’s. She told me back then she wished there was more information available to help her understand and deal with her disease as it was progressing, and written in a way that she could understand (i.e., without medical jargon).

At that point, no one had told us how powerful music could be in helping her mobility, or that there are reasons not to join a support group (there are definitely pros to joining one, but there are also cons), or that sometimes symptoms could disappear just by being really happy. We chatted about these and other useful tips she had learned about living with the disease, and shortcuts she had figured out on her own.

Mom told me she wished she had known these tips earlier, that someone living with the disease could have helped make her life easier, sooner. As a daughter, caregiver, and writer, I felt I could help others like my mom by writing a book that offered practical tips and answered the most pressing questions of someone living with the disease.

 

Q: How important do you feel it is for patients and family members to get this type of information early? What kind of things does your book provide for those in all parts of their Parkinson’s journey?

Marie: Being informed, or “Parkinson’s literate,” as my neurologist friends say, is imperative not only for people with Parkinson’s but their care partners as well. Having an understanding of the diagnosis process, the motor and non-motor symptoms, as well as other facets of the disease and how they may affect you, is essential to learn early on so you can make more informed treatment decisions.

Both books aim to walk a person affected by PD from diagnosis to the end-stages of the disease and give practical information and tips on how to manage the various challenges that a person with Parkinson’s may face.

 

Marie’s THE COMPLETE GUIDE serves as a comprehensive guide to Parkinson’s patients and their loved ones.

 

Q: What convinced you to take a whole book to concentrate on the experience of the caregiver?

Marie: The caregiving book resulted from many years of witnessing the toll caring for someone with Parkinson’s can have on a person if they don’t have the right help and tools. It was initially inspired by my stepdad, who, while caring for my mom in the later stages of Parkinson’s, unfortunately, neglected to care for himself and suffered burnout and significant health issues. Additionally, I learned (through trial and error) many things about how to better care for my mom and wanted to help others save time and energy by putting them all together in an easy to read book.

My ultimate goal is to help caregivers feel less alone and give them hope that they can make it through this often challenging Parkinson’s journey with their loved one.

 

Q: What are you trying to provide with these books that those affected by this disease can’t find elsewhere?

Marie: I am amazed at how little information is out there written by people who have first-hand experience with Parkinson’s disease. Most books, as my mom pointed out when she was first diagnosed in the 1990s, are written by doctors, and often don’t deal enough with the specific day-to-day issues people with PD want help with. Through my AllAboutParkinsons.com website and Facebook page, I’ve been able to ask thousands of people with Parkinson’s what their most significant challenges are, how they’ve coped with these challenges, and address them head-on.

 

Q: What are some steps you’ve taken with the books to make this information as accessible as possible for patients and caregivers?

Marie: By listening to my readers over the past many years, I’ve learned what topics are most important and made sure to include them. I’ve also received many tips from people with Parkinson’s and their caregivers and sprinkled these throughout each book.

As far as the overall structure of the books, I’ve dissected the hard to understand medical information and explained it in layman’s terms. Both books are organized into several sections with shorter chapters so that topics are easy to find and digest. I’ve also included a “words you need to know” section in both books for terms that may be unfamiliar.


Thank you to Lianna! If you would like to know more about these books you can get your own copy or request them from your local library.

You can get 30% off these titles and any other Purdue University Press book by entering the code PURDUE30 when ordering from our website.


SPRING ’21 Course Spotlight on ILS 39500H: Conflict & Control: Information in the 20th and 21st Century

October 12th, 2020

Spring ’21 Course Spotlight

ILS 39500H: Conflict & Control: Information in the 20th and 21st Century

Meeting Times: TR: 1:30pm-2:20pm (1st 8 weeks) 1.0 Credits
Instructors: Jean-Pierre V M Hérubel, Thomas Gerrish, & Clarence Maybee

Anytime information is used for a particular means, conflict is inevitable. This seminar course examines historical and current societal issues and challenges related to the consumption and production of information. The course delves into how the use and misuse of information has resulted in historical and contemporary challenges, including ethical concerns in the dissemination of science, technology, engineering and mathematics (STEM) information, the capturing and sharing of surveillance and privacy information, the creation and sharing of disinformation and ‘fake’ news, and information on social media that takes on a life of its own (i.e., going viral). New issues will be examined weekly and students will be able to introduce topics of interest as well. The cumulative final project will allow students to select and explore their own topics on an evolving information practice and its influence on culture or society.

Learning Outcomes:
1) Describe the role that information plays in societal events or movements.
2) Explore how information has been used to influence historic or contemporary events.
3) Determine the benefits and/or challenges for individuals or society related to a historical or contemporary usage of information.


University Library Committee to Focus on Sustainable Scholarship

October 6th, 2020

This article originally appeared in Provost Akridge’s September 2020 newsletter.

The University Library Committee (ULC) held its first meeting of AY 20-21 on August 31, 2020. Composed of campus and faculty leaders, the ULC is responsible for review and consultation on the performance of library services and allocation of resources. The ULC communicates major issues and opportunities within Purdue Libraries and School of Information Studies (LSIS) to the Purdue faculty at large.

This year, as the cost of renewing subscription resources continues to outpace inflation rates, the ULC will pay particular attention to making scholarship more sustainable at Purdue. At the Aug. 31 meeting, the ULC began this process by establishing goals of openness, transparency, and financial sustainability when negotiating with information resource vendors.

“As a land grant university, our mission is to provide broad access to education and knowledge beyond the academy,” said Dean of Libraries and Esther Ellis Norton Professor of Library Science Beth McNeil. “We believe that Purdue-authored scholarship should be more accessible to the public. Consequently, we plan to prioritize working with publishers who support open access and quality scholarship for all.”

A subset of ULC members will expand upon this preliminary work in the newly charged Sustainable Scholarship Committee this fall. “The goal of this committee is to bring together a group of leaders who believe strongly in the importance of sustainable scholarship and its role in the future of cost-effective, world class education and research at Purdue University,” said Dean McNeil. “We will rely on the ULC and the Sustainable Scholarship Committee to help us raise awareness and begin dialogues on this critical issue across campus.”


Featured Database: BCC Market Research

October 6th, 2020

Parrish Library’s Featured Database will give you a very brief introduction to the basic features of one of our specialized subscription databases. This time we’re featuring BCC Market Research, brought to you by Academy Association, Inc.

Focus

BCC Market Research contains market research reports, industry reviews, newsletters and conferences for competitive business intelligence.

Access

The List of Business Databases is the alphabetical list of the databases specially selected for those in a business program of study. Access the databases off-campus with your Purdue login and password.

Tutorial

Click Getting Started with BCC Market Research to see the basics of using BCC Market Research.

Why Should I Know About This?

BCC Market Research reports are comprehensive, covering a wide scope of industries and technologies, and can be used to understand trends, latest applications, and key players within a given market.

Related Resources

Some other resources you might want to explore, are:

  • Mintel, includes market research reports covering a variety of sectors including consumer goods, travel and tourism, finance, retail, and more.
  • Passport, provides business intelligence on countries, consumers and industries; offering integrated access to statistics, market reports, company profile and information sources.

Featured Database comes to you from the Roland G. Parrish Library of Management & Economics. If you would like more information about this database, or if you would like a demonstration of it for a class, contact parrlib@purdue.edu. Also let us know if you know of a colleague who would benefit from this, or future Featured Databases.

Since usage statistics are an important barometer when databases are up for renewal, tell us your favorite database, and we will gladly promote it. Send an email to parrlib@purdue.edu.

 


HSSE Featured Database – Dissertations and Theses Database

September 24th, 2020

Humanities, Social Science and Education Library’s Featured Database will give you a very brief introduction to the basic features of one of our specialized subscription databases. This time we’re featuring Dissertations and Theses database, brought to you by ProQuest LLC.

Link: https://guides.lib.purdue.edu/db/db78

Access the databases off-campus with your Purdue login and password.

Focus: This database contains a comprehensive collection of over 2 million dissertations and theses. Included in this collection are dissertations and theses from thousands of universities around the world, with more being added each year. Some of the full-text coverage extends back to 1743, with citation coverage dating back to 1637.


Tutorial: Click here see the basics of using the Dissertation and Theses database.

Why you should know this database: This database is designed to give access to wide variety of dissertations and theses from thousands of institutions.

Quick tip: If you look on the References tab for a dissertation or theses you are interested in, there will be a list of resources that are referenced in that item. Resources that are available online through ProQuest will have a link that will connect you with those resources. Items that are available through other Purdue Libraries resources will have a Find it at Purdue button.

Related Resources:

Another helpful resource you might want to explore is:

Dissertations LibGuide: https://guides.lib.purdue.edu/c.php?g=352215&p=2375069


Our Institutional Home at Purdue

September 21st, 2020

This blog series, Putting the “Purdue” in Purdue University Press, is celebrating PUP’s 60th Anniversary by featuring the work the Press does in service to its parent institution. You can find the whole series here.

This post celebrates our relationship with the Purdue University Libraries and School of Information Studies.


While Purdue University Libraries and School of Information Studies (PULSIS) is our departmental home at Purdue University, much of our relationship is defined by the wonderful services PULSIS has to offer that help Purdue University Press accomplish its mission.

As we’ve noted earlier in this series, the Purdue University Archives and Special Collections, a department within Libraries, plays a large part in many of the books we publish, specifically those about Purdue University.

The Neil A. Armstrong Papers provided the source materials for two recent books, Dear Neil Armstrong and A Reluctant Icon, both compiled by Armstrong’s authorized biographer James R. Hansen. The books examine the life and legacy of the first man on the moon through correspondence he received throughout his life.

The Archives also played a significant role in the books we published for Purdue’s 150th celebration. Purdue at 150 was co-authored by four of the archivists, and utilized many pictures coming directly from the collections there. Ever True author John Norberg often remarks on the long hours he has spent in the archives.

“In working on Ever True: 150 Years of Giant Leaps at Purdue University and other books, I spent many long hours in the archives. I was able to look at the material available online and request what I wanted to see. I sat at a table and the always very helpful archivists brought boxes to me. I opened the boxes and found letters, speeches, diaries and much more.” said Norberg in a previous interview. “History is the stories of people and in the Purdue Archives people came back to life, sat beside me and told me their victories and tragedies, joys and sorrows.”

We have published books on Purdue for a long time, and the Archives is the most important source for many of them. Thanks to another service provided by PULSIS, Purdue e-Pubs, you can access several of them for free online.

Purdue e-Pubs is a service that provides publishing support for original publications as well as hosting for Purdue-affiliated articles, reports, conference proceedings, student scholarship, and more. Purdue e-Pubs hosts many projects for Purdue University Press, including a collection of completely open-access books. This includes projects made open-access through Knowledge Unlatched, classic books on the history of Purdue, and our series The Year in C-SPAN Archives Research, which we recently announced was becoming completely open access.

Other Purdue University Press resources made available through Purdue e-Pubs include a collection of open-access journals, free previews of each new book we publish, and all Joint Transportation Research Program reports, including each year’s Road School proceedings.

Our Press is administratively a unit of PULSIS and the Director of our Press reports to the Dean of Libraries and School of Information Studies. PULSIS provides wonderful resources and services that help us achieve our goal of disseminating valuable and worthwhile scholarship. For that we are very thankful.